From March 3-4, the Angelman Syndrome Foundation (ASF) and Foundation for Angelman Syndrome Therapeutics (FAST) held their third annual Angelman Syndrome Congressional Advocacy Day..

Angelman Syndrome advocacy — and, for that matter, the advocacy of ASF and FAST — demonstrates how the pursuit of greater independent-living capacity can still be logically and strategically consistent with the pursuit of a reality of interdependence. 

A recent Government Accountability Office report found a lack of accurate, community accountable data on the experiences of disabled people in accessing healthcare.

These data gaps limit research and civil rights protections for disabled people as well as minimizing the true scale of unmet accessibility needs.

Disabled people deserve better. Here’s how we can move forward.

We know that “interdependence” isn’t a word that’s used a lot in casual, everyday conversation. Especially not in the U.S. So, what do we mean when we talk about “interdependence?”

Our work is focused on disability - but what exactly does that mean? And what does it mean to center disability?

This blog serves as a quick intro to the team and provides information about why we started the Interdependent Futures Lab.